This was a week that our family had looked forward to for quite some time. Lauren and I traveled to an intense feeding clinic in the hopes that she would soon be weaned from her g-tube feedings. She has made amazing progress over the past few months and now eats a wide variety of foods. Unfortunately, she enjoys eating foods a whole lot more than she enjoys drinking anything.
After the first few meals, it became apparent that Lauren was still going to need g-tube feeds after we left. I was disappointed to say the least. I had such high hopes for this program.
The bottom line is hidden somewhere on page three of her discharge paperwork: "not ready from a developmental standpoint to take in all of her necessary fluid requirements." Lauren's learning to take bigger drinks, and she has a new cup that will encourage her as she learns. At the same time, she'll continue to work on improving her upper body strength and developing the breath support that will make drinking easier.
I guess I'm okay with the way this week turned out. I can be patient for a while longer. Perhaps waiting will be a bit easier now that I understand how difficult it is for Lauren to "just drink her milk." Maybe the next time I remind her to take a few more sips, I'll be a bit more patient.
Last year when Lauren and I were at CHoP, I often sang the line from Fireproof, "I will serve you while I"m waiting. I will worship while I'm waiting on You, Lord." This year, I have a new song, and I'm still singing. "All of my life, in every season, You are still God. I have a reason to sing. I have a reason to worship."